International Network for Fatty Acid Oxidation Research and Management

​​Sunday September 1, 2019
Session 1:      Welcome and Keynote Speaker

15:30-16:30   Registration

16:30-16:40   Welcome

16:45-17:45    Keynote

17:45-18:15    Discussion

19:00-21:30   Networking Reception and Poster Presentations 

Monday  Morning September 2, 2019
Session 2:     FAO Outside the Box

7:15-8:30      Registration

8:30-9:00     1st Presentation, Invited Guest

9:00-9:30      2nd Presentation, Invited Guest

9:30-9:45      Travel Grant Recipient Presentation (1)

9:45-10:00    Travel Grant Recipient Presentation (2)

10:00-10:30  Break

Session 3: Cellular Models of FAOD

10:30-11:00  3rd Presentation, Invited Guest 

11:00-11:30   4th Presentation, Invited Guest 

11:30-11:45    Travel Grant Recipient Presentation (3)

11:45-12:00    Travel Grant Recipient Presentation (4)

12:00-12:30   Panel Discussion

12:30-14:00   Lunch

Monday Afternoon September 2, 2019
Session 4: New Clinical Insights in FAOD

14:00-14:30   5th Presentation, Invited Guest 

14:30-15:00  6th Presentation, Invited Guest 

15:00-15:15    Travel Grant Recipient Presentation (5)

15:15 -15:30    Travel Grant Recipient Presentation (6)

15:30-15:45    Break

Session 5:    Systematic Impact of FAOD

15:45-16:15     7th Presentation, Invited Guest 

16:15-16:45      8th Presentation, Invited Guest

16:45 -17:00    Travel Grant Recipient Presentation (7)

17:00 -17:15    Travel Grant Recipient Presentation (8)
17:15-17:45      Panel Discussion

17:45-17:55     Summary & Closing remarks

Departure for Rotterdam from the Amsterdam Central Station 

​INFORM 2019 Agenda
Sunday, September 1st & Monday, September 2nd 2019 in Amsterdam, The Netherlands. 
Transportation will be provided to Rotterdam for the SSIEM on Monday Evening September 2nd . 


                                       Thank you for your part in supporting INFORM 2018 through your
                                       attendance and/or your financial sponsorship. 
                                       As the only symposium of its kind in the world, INFORM gives
                                       clinicians and researchers the opportunity to promote research and
                                       discussion into the cause, diagnosis,and management of inborn errors
                                       of fatty acid oxidation.

                                       We’ve already identified several action items from September’s
                                       symposium and look​ forward to working across institutions 
to continue to further the best and most advanced therapeutic strategies in the treatment ​of FAODs. We hope you’ll continue to be involved with our efforts to host another wonderful INFORM Symposium planned for September 1st and September 2nd ​of 2019 in Amsterdam, The Netherlands.

​In the meantime, please accept my deepest appreciation for your commitment to those grappling with FAODs. 

With gratitude,
Jerry Vockley, MD, PhD

University of Pittsburgh
   Cleveland Family Professor of Pediatric Research
   Professor of Human Genetics
UPMC Children's Hospital of Pittsburgh 
   Chief of Medical Genetics
   Director of the Center for Rare Disease Therapy

UPMC Children’s Hospital of Pittsburgh - Medical Genetics - One Children's Hospital Drive
Faculty Pavilion 1st Floor - 4401 Penn Avenue - Pittsburgh, PA 15224
​Office:  412.692.5099  
 Keith McIntire -  Coordinator, INFORM -​

Previous Agendas

​​​​​​​​​​​​​INFORM 2019 September 1st & 2nd in Amsterdam!

Learning objectives

After attending the conference, participants will be able to:
Identify disorders of the carnitine cycle and of fatty acid oxidation. Be familiar with biochemical and molecular technology used to confirm the diagnosis of fatty acid oxidation disorders Identify markers that enable pre-symptomatic diagnosis by newborn screening
of fatty acid oxidation disorders Understand controversies in the management of disorders
​of the carnitine cycle and of fatty acid oxidation.

Target audience:
Researchers, pediatricians, internists and specialists in inherited metabolic diseases, nurses, dietitians and nutritionists, genetic counselors, scientists, INFORM members, and all other healthcare professional involved in diagnosing or managing disorders of the carnitine cycle and of fatty acid oxidation. 

Agendas Past and Present